Here we go.

Well here we go The first round of the testing is set to take place next week. The upside to all of this is that we don't have to go back to Sacred Heart to have the testing done it can all be done here in Moscow at Gritman Medical. In one day they are going to attempt to do an Echo to check his aortic valve & heart murmur. Once that is done they will attempt an ultrasound to check the position of his kidneys. Finally if he will tolerate it they will draw some more blood to check his calcium levels. We will see if it can all be done in one day but the hopes for it aren't that great since we know from past experience it doesn't start or end well. Once these test are done we will have to go back to Sacred Heart to speak with the geneticist about the results again.

When Ethan had to do his very first echo at Dornbeckers in Oregon they gave him a anesthetic to try and calm him down so they could do the echo. Well when they did he had an adverse sort of reaction to it in where he would not calm down in fact it ended up making him lethargic to the point were he would not eat all day long and we ended up in the emergency room at the end of the day because he wouldn't come out of it. Thank goodness he did around midnight. Little did we know at the time that this reaction might have been a part of having Williams Syndrome. They are still doing studies on the affect of anesthesia on WS children but in a case were 26 children ages 6 month to 19 under went 60 surgical and cardiac operations one child a 18 month baby had a adverse reaction to anesthetic. Needless to say that was the first and last time we let anyone give him a anesthetic. We now know we have to inform the doctors before a surgery to beaware of his past reactions and the fact he has WS.

Ethan has gotten better about being around doctors but he will still go into a crying fit even during a regular yearly check up. We have learned to just go with it after all this itme but when it comes to some one new having to work with him its hard to explan to them what is going to happen.