Wednesday, August 22, 2012

Blessed

     The results are in and we couldn't be more thrilled with what we heard. Hearing that everything is fine for now is the best feeling ever. His echo did still show a smaller narrowing in the aortic valve which has been there since he was born and has always grown with him so that is not a concern at this time. The ultrasound reviled the bladder and kidneys to be just great. The blood levels came out normal for the calcium levels. However one of the two thyroid test done did show a difference which is nothing to worry about now but we will test again next year. So all in all things are great. This information came from his Pediatrician and confirmed by the geneticist.

     It's nice to know we don't have to change his diet or start giving him any med's for anything. As far as his development we were told to keep doing what we are already doing. School will be starting soon so he will be back to his old routine with the speech therapist, fine and gross motor skill therapy at school. Hopefully if we can make it work he will still be getting an extra dose of speech therapy at Gritman and maybe another motor skills session, we will see. It is just a blessing to know that even thought he has Williams Syndrome his health is just wonderful for now and his developmental skills have gone from being 1 year behind his peers to only half a year behind. We couldn't ask for a better out come and hope that as he grows older the results keep coming as good as they have been. Yet no matter what happens he is still our little man and loved by so so many. Thanks everyone for all the prayers sent his way.

Tuesday, August 14, 2012

Tears and Smiles

     This last friday was the day we took our little man to Gritman for his tests. Like most trips to see the doctor we had prepared our selves for the worst. None stop crying from Ethan. Yet we were surprised by how he actually did handle himself, and yet again it is another sign of how much he is growing up already. Now don’t get me wrong it started out just like any other visit to the doctors for just a check up.
     Since the appointments were set we have been avoiding telling Ethan about going for these test and for good reason. It is very draining to here every day that he doesn’t want to go see the doctor and he cries about it. So like the wonderful parents we are we opted not to tell him until the last moment. 1 hr before we left he got the news and like always there was protest but this time there wasn’t a whole lot of time to protest. The first test was the Ultrasound on his kidneys and bladder. It’s not easy keeping fluids in a little guy the minute he laid down he wanted to go to the bathroom. The gal was fast enough to get the picture of his bladder so he could go but getting a picture of his kidney’s was a little harder. Yes he cried the whole time but she was very patient with him and we got it done. Next was the ECHO for his heart. Now we aren’t sure if it was because he wore himself out in the first test or she was just that good but he cried only for one minute with the next gal. Maybe it was a little bit of both. Ethan did wonderful he laid back with his hand behind his head and watched some Mickey mouse while she got every thing she needed. Now the last test. We knew it wouldn't be easy for him but then again when is a blood draw ever easy. The nurse was patient and even with tears it went smoothly. In the end he got a bounce ball, pinwheel, stuffed frog and a smile on his face.
      Now we play the waiting game as usual. We aren’t sure how long it is going to take for the results of the test to be know but once they all come back in it is back to the geneticist for another talk about what is going on his insides. So we still don’t have all the answer and we may never but we are on the right track and as always we will keep everyone updated. Now how about a well deserved vacation by the lake that sounds fun.
Ethans Camo bandaid

Tuesday, August 7, 2012

Pool Fun

       Finally we had a break in our busy life to have some fun at the pool. Just a few pics from our first pool day. Most of the time all our pictuers at the pool are of me and Ethan, but this time I got to take the pictuers of Kevin and Ethan having fun. Ethan hasn't had any swimming lessons in part that he was never comfortable going in the water. Which like everyhitng else he wouldn't do. We now know a possible reason why. He really still isnt comfortable going in at first but like a true loving mom i always just pick him up and take him out and the both of us get wet. Once he gets wet he general wont let go of us. He will let us hold him under his belly while he trys to kick and swim.


Well this firday is the big testing day wish us luck. We just might have to go back to the pool afterwards to get our happy boy back.

Wednesday, August 1, 2012

Cousins

This last weekend Ethan and I got to meet my cousin Russells kids for the first time and Ethan got to meet my uncle Jerry (moms brother) for the first time. They are a very active and nice kids to be around. Eby and Ethan really hit it off and were out in the yard playing games. We don't get to see them very often so it was nice to get to see them and have Ethan meet them for the first time.